Congenital Anomalies in Canada:

Additional Resources

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This resource page provides additional information on congenital anomalies and perinatal health in Canada including published tools, reports, journal articles and webpages.

For more information about perinatal health surveillance in Canada:

• Public Health Agency of Canada: Perinatal Health Indicators

For more information about congenital anomalies and perinatal health in your province or territory, click on the following program sites and data products:

Nunavut

Government of Nunavut: Department of Health

• Maternal Child Health Status in Nunavut:1999 to 2011

Yukon

Government of Yukon: Babies and children’s health

• Report on congenital anomalies (for health care providers)

Northwest Territories

NWT Health and Social Services: Congenital Anomalies Registry
Government of Northwest Territories: Information for Health and Social Services Professionals

British Columbia

HealthLink BC: Pregnancy and Parenting
Provincial Health Services Authorities: Perinatal Services BC Perinatal and Newborn Health Hub

• Perinatal Health Reports – Section Congenital Anomalies

Office of the Provincial Health Officer (OPHO): Reports & Publications

Alberta

Alberta Perinatal Health Program
Alberta Congenital Anomalies Surveillance System Fourteenth Report: Data for 1997-2021
Alberta Health Services: https://www.albertahealthservices.ca/

Manitoba

Child and Youth Programs | Province of Manitoba
Manitoba Health: https://www.gov.mb.ca/health/

Ontario

Better Outcomes Registry and Network (BORN): https://www.bornontario.ca/en/index.aspx
Public Health Ontario: Reproductive and Child Health Data

• Maternal and Infant Health

Québec

Institut national de santé publique du Québec (INSPQ): Individual and community development | Institut national de santé publique du Québec

• From Tiny Tot to Toddler Guide

Ministère de la Santé et des Services sociaux: https://www.msss.gouv.qc.ca/

New Brunswick

New Brunswick Perinatal Health Program: https://horizonnb.ca/horizon-services/provincial-program/nb-perinatal-health-program/

• Publications: NB Perinatal Health Program Perinatal Health Profile 2018-2023

Newfoundland and Labrador

Eastern Health: https://www.easternhealth.ca/

• Perinatal Program Newfoundland and Labrador
• Congenital Anomalies in Newfoundland and Labrador Dashboard

Nova Scotia

Reproductive Care Program of Nova Scotia: https://rcp.nshealth.ca/

• Nova Scotia Atlee Perinatal Database Report of Indicators: 2010-2019

For more general information about congenital anomalies, surveillance and research:

• March of Dimes
• Society of Obstetricians and Gynecologists of Canada (SOGC)
• Canadian Paediatric Society
• International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)
  • Annual Report 2014
• European Network of Population-based Registries for the Epidemiological Surveillance of Congenital Anomalies (EUROCAT)
• World Health World Health Organization: Congenital Disorders
  • Congenital Disorders Fact Sheet
• National Birth Defects Prevention Network (NBDPN)
• U.S Centres for Disease Control and Prevention (CDC): Birth Defects
• The Health of Canada’s Children and Youth: Canadian Institute of Child Health Profile
  • Module 2: Genetics and Paediatric Health – Section 5 Congenital Anomalies
• Public Health Agency of Canada: Congenital Anomalies in Canada 2013 – A Perinatal Health Surveillance Report
• Provincial and Territorial Congenital Anomalies Surveillance: A Summary of Surveillance Programs Across Canada, HPCDP: Vol 44(5), May 2024